FACTS NOT FEAR

"Sudden Unexplained Death In Childhood (SUDC) is the sudden and unexpected death of a child over the age of 1 year, which remains unexplained after a thorough case investigation, including review of the clinical history and circumstances of death, and performance of a complete autopsy with appropriate ancillary testing.”

(Krous et al. 2005)

Every year, around 400 kids (ages 1-18) in the U.S. die without explanation; every year, around 400 families are devastated and try to get through the day.  These numbers will grow as more cases are identified (via awareness, education, and research), as these numbers are likely greatly underestimated.

Knowledge of SUDC in the medical community and general public is extremely scarce. Currently, there are no known causes or preventative measures for SUDC. Unlike other more well known, yet less frequent causes of death in children, there is no federal funding for focused SUDC research.

Sudden Unexplained Death in Childhood is the 5th leading category of death in children ages 1 to 4. 

 
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RESEARCH

Research is to see what everybody else has seen, and to think what nobody else has thought. -Albert Szent Gyorgyi

Research studies into the causes of SUDC are scarce.  Few known studies are being conducted currently.

It is the focus of the SUDC Coalition to drastically increase the amount of SUDC research being conducted worldwide. This includes the expansion of genetic research, initiating studies on other potential causes, and creating a global SUDC research community.

 
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WHAT CAN WE DO?

At this time, there are no known preventative measures that will actively reduce or stop the incidence of SUDC.  This is due to the lack of research and understanding of the cause(s) of Sudden Unexplained Death in Childhood.  The Coalition is actively seeking research partnerships and advocating for inclusion of SUDC into existing studies.  You can help by joining the Coalition.  


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